The sad but true news is that cystic fibrosis patients do pose a threat to each other. That's because they carry specific types of antibiotic-resistent bacteria in their lungs that, if swapped, can cause lung infection.
And chronic infection leads to lung damage which can shorten a CF patient's life span. Obviously, the best way to prevent cross-infection is to keep CF patients at a safe distance from each other and to discourage the sharing of objects.
Cystic Fibrosis Trust - Cross-infection at events | Cystic Fibrosis Trust
Hospitals and doctor's offices also follow special guidelines to prevent cross-infection. Relatives planning to have children and going through genetic testing for CF will be able to find one another, as well as parents of children struggling with the illness.
Today, the average age of survival is While research into causes and treatments continues, initiatives to support the social aspect of living with the chronic illness are also important. The network was fully funded by Novartis Pharmaceuticals Canada Inc. Copyright owned or licensed by Toronto Star Newspapers Limited. They realized they were falling in love.
Cross-infection at events
For most other couples, the next step would be to meet in person. But for Katie and Dalton, that was complicated -- and dangerous. A real 'Fault in Our Stars' couple Cystic fibrosis patients shouldn't be near each other because they can share infections that could cripple their already fragile lungs.
Michael Anstead at the University of Kentucky, Katie's pulmonologist since she was a little girl, had lectured her many times that face-to-face meetings with other CF patients were a bad idea. In their online conversations, one of the first things Dalton told Katie about himself was that he had Burkholderia cepacia , a horribly dangerous infection for people with CF.
Cystic Fibrosis patients can’t risk health by meeting in person, but now have online hangout
Katie listened to her heart, even if it might hurt her lungs. She asked Dalton to come visit her in Flemingsburg, Kentucky. Katie and Dalton met in So on August 28, , Dalton drove more than six hours from St. Katie took Dalton and his mother, Renee, who'd made the trip with him, to have dinner with her and her parents, Debbie and John Donovan.
Later the young couple drove around Flemingsburg, and Dalton gave her a necklace for her nineteenth birthday, which was two days before.
Cross-infection at events
Their health quickly deteriorated, and within months, the new husband and wife went on oxygen full time. Too ill to work, Dalton quit his job at his family's auto repair shop, and Katie quit hers as a store clerk. In August, , the couple entered the University of Pittsburgh Medical Center together to wait for new lungs.
Dalton's came first, and on November 17, he had his transplant. Despite his Burkholderia cepacia, which makes transplants more complicated, it was a success.
The month after Dalton's surgery, UPMC discharged Katie -- she says they told her it would be psychologically good for her to get out for a while. When she had serious trouble breathing three days later she tried to get back into the hospital, but UPMC informed her she'd used up her supply of Medicare days and wouldn't accept her.
Medicare -- the federal insurance program for the elderly and for anyone with disabilities -- wouldn't pay for another hospitalization until Katie had been out of the hospital for sixty days. But Katie was too sick to stay out of the hospital for six days, much less sixty. So Katie relied on Medicaid, public insurance that was supplied by her home state of Kentucky.
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She was admitted to the University of Kentucky Hospital, where she was cared for by Anstead, her beloved pulmonologist. But then, another hurdle. Anstead explained that most lung transplant centers, including the two in Kentucky, don't do transplants on patients with Burkholderia cepacia, referring them to larger centers like UPMC that have more experience with such complicated cases. Katie and Dalton, now 24 and 23, were desperate.